Rewriting my Diabetes Story – Part 2

Last week, I shared part 1. The moment we received those words life as we knew it changed.  Sharing the struggles, challenges, emotions I hope helps others feel not alone.

Now, I want to turn my focus to what happened AFTER my stress leave.

Atter Stress Leave:

I remember a conversation with my doctor that I was thinking of quitting being a nurse. At that time it had been 22 years and it was painful to think about “not being a nurse”.  At the same time I felt it hard to juggle both…being available when needed for kids while at school and worrying about making mistakes nursing while I knew my thoughts and focus would be on the kids.

Eventually I made a decision Inwas well enough to work but just knew I didnt want to return to fulltime and didnt want to go through the stress of fighting for an accommodation. So I quit and went casual. 

I got a position at our city’s diabetes clinic thinking this is what I really wanted.

And then it wasnt.

I loved chatting with parents about diabetes but I felt rushed to make important decisions for insulin adjustments.

Adjusting other peoples insulin was stressful. It is not easy and is complex. I need to really understand the reasons behind the highs and lows and study clarity before I make decisions with my kids. 

Some changes are easier but that has come with KNOWING my kids and their patterns.

I couldn’t  get everything done in 30 minutes and feel confident sending them off. I would have loved to just been able to phone them the next day to see how changes worked out but that wasn’t allowed.

There just wasnt the time.

The way it was run it was rare to see the same family and it was just random for who saw them next. 

One day in orientation I was nudged I needed to get back to the checklist of asking about eye appointments/dental exams when someone was sharing their emotional struggles. We only had 30 minutes. I was so annoyed and just felt it was not the place for me.

I also found it hard to not be able to share little tips/tricks that work for my kids if they were different than the guidelines we were supposed to teach by.

Helpful tools I recommend is the book Sugar Surfing and the Juice box podcast. I also recommend to get counselling. At diagnoses we get a crash course in diabetes but we caregivers also need support for US. For how to deal with all the difficult emotions like fear, grief and feeling helpless with a 24/7 chronic disease that is complex and unpredictable.

So Instead, I decided I wanted to create a support group for T1D moms.

My goal is to help others connect, share their experiences, and truly know they’re not alone in navigating the challenges of managing diabetes.   I had the idea of
“Doing Diabetes Different”  soon after quitting that job.  Just like anything if something is not working dont keep repeating it.  Try something different and try to not stay stuck.

Then I started The T1D Mom Makeover.  A program for moms that want to make improvements.  To their own struggles and or for their kids diabetes.  

Registration for Round 3 is open NOW! Click HERE for details.

I want us moms to be ok and I want our kids to be ok.  If you need support please reach out. My email is doingdiabetesdifferent@gmail.com.

Lessons I’m Embracing

1. Some is better than none. I am working on my perfectionist tendencies. I dont want to only focus on diabetes. My kids have other parts of their lives that are also important. My goal is to meet targets for time in range and A1C. Consistency beats perfection every time.

2. Community is important for support and accountability. Surrounding myself with people who understand my journey and “get it” has been a game-changer. I’ve learned that I don’t have to do this alone.

3. Don’t procrastinate on what matters. Putting off important things only adds to the stress when they become urgent. I’m learning to tackle what’s important sooner rather than later. 

4. My health matters. With my kids having type 1 diabetes it has become part of my mission to prevent type 2 diabetes for myself. They dont have a choice…I do. It is not easy but I am trying to change habits that are not serving me and replace them with habits that make me feel healthy and strong.

Moving Forward

Living in the present isn’t always easy, especially when there’s so much to juggle. But I’m learning that being here—fully present—is the only way to create the life I want for myself and my family.

Next week, I’ll share Part 3 of this series, where I will talk more about creating a vision for the future. Because rewriting our story doesn’t stop at today—it’s about imagining the future and where you hope to be.  Having a map as a guide for what I need to do now to get me to where I want to go.